1. Add possible constipation to the many reasons a sweet dessert should be an occasional, not regular, thing. Children younger than 24 months old should avoid added sugars. Definite gastritis or duodenitis is a much stronger reason for use and for potential benefit than simple, uncomplicated heartburn. Climbing the stairs is not required. Each patient is different, so ideally these should be discussed with a doctor or nutritionist to determine the best plan. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. has been associated with respiratory depression and respiratory arrest. The amount of B6 is small as long as multiple pills are not used daily. Reason for this is that milk contains electrolytes and potassium in relatively higher amounts than water, because of which it helps in rehydrating the body post-exercise in a better way. Older antidepressants like tricyclic antidepressants and monoamine oxidase inhibitors have been known to cause discontinuation effects. The vitamin B 12 can make people with CMT show their weaknesses more and come out and different ways. Access our archives since 2014. Some forms affect muscle tone (dystonia), which can disrupt balance, especially if it is abnormal at the outset. The mechanism in each of these substances is different and in some of them, the exact mechanism is unknown. Weight gain can be a serious issue in CMT, as weakened muscles and fatigue can make it difficult for patients to keep active. Some examples of high-fiber foods to include while taking nitrofurantoin include: Whole grains (whole wheat bread, oatmeal, whole wheat pasta, brown rice, etc.) Download it here: Dear-Medical-Professional.pdf. Would like some help from others relating to my problem with C.M.T , food advice to diminish the pain. My eating habits are bad. Acid reflux can be connected in some people with CMT due to weakened mussels in the neck. I jumped out of bed. Its possible that more local weakness than average will be produced in CMT patients, especially if the injections are in the legs. pineapples: pineapples come with papain and bromelain, i.e. by Brielle Gregory Updated: Dec 22, 2021. Lansoprazole and omeprazole are the only two gastric reflux medications on our neurotoxic drug list and they are associated with neuropathy in only a very small number of patients. Good: Shellfish. We are grateful for your generosity in supporting our mission! The only notable interaction is with the treatment and certain HIV-drugs, which I presume are not an issue. The foods that you eat need to do more than just fill you up. The CMTA is a 501(C)(3) nonprofit organization, EIN# 22-2480896. Elevated CK levels, in general, are not common with CMT. Thanks, Oscar. CMT starts in infancy and lays dormant in the body until one day the symptoms start to appear. I went to PT for 6 months. 19. CMT patients are, therefore, confronted with a cost-benefit analysisthe feeling of well-being associated with these medications versus the fear of falling down and injuring themselves. Fermented or pickled foods (such as sauerkraut, kimchi, caviar, pickles, and kombucha) Banana peels Broad bean pods (such as fava beans) and snow peas Instead, try: All other fresh, frozen, or canned fruit, vegetables, and beans Grains Avoid: Fermented bread, like sourdough Breads with aged cheeses and processed meats Instead, try: The treating MD should have mentioned these possibilities. The risk is minimal if the drugs are indicated. However, the drug appears to be intolerable to this patient and probably best avoided. Three small portions of dairy a day, especially reduced-fat versions, are also important. How was the diagnosis process? I am not aware of any problem with Propofol as an anesthetic in CMT patients. Eating breakfast not long after getting up can also be important, as this kick-starts the metabolism and can help burn calories faster. Having a neuromuscular disease like Charcot-Marie-Tooth syndrome can pose some unique challenges to weight loss, especially when designing an exercise and diet routine. 30 foods to avoid Yogurt with fruit Plain yogurts are a good source of probiotics, which is great for your gut health. French fries and potato chips. Use Midazolam I.V. Hi im 34 and have cmt type 1A, iv read alot of bad things how people end up life wise that have cmt but there must be people out there that life a long an able life, i would love to hear from people, regards Grant. Required fields are marked *. The changes described are not surprising following the loss of the hormone treatment, but testosterone has not been adequately examined for safety and efficacy in CMT patients to recommend use for neuropathy. Let's go girls! A salmon meal is another that is well within my comfort zone. The numbers in the parentheses (1, 2, 3) are clickable links to peer-reviewed scientific papers. Wash your hands for at least 20 seconds with soap and warm or cold water before, during, and after preparing food and before eating. We are not doctors, so we urge you to consult a doctor before beginning an exercise plan. And. It may also enhance the risk of seizures in susceptible individuals. Just eat healthy. I have yet to figure out what to do with turmeric. The risk of worsening the neuropathy appears to be very small, but incompletely known, while the benefit of the drugs is well established. Because my feet were cramping in and out. Of course, if they dont actually need the statin, they should think carefully before using one. I know of no evidence linking their use to worsening or causing neuropathy, abnormal muscle cramps or muscle spasm; however, the timing raises the question in this case. The agent was placed on the list based on the experience with other types of patients receiving the drug as part of their chemotherapy. He suggested CMT-ers focus on foods high in anti-inflammatory components: Green leafy vegetables Bok choy Celery Beets Broccoli Blueberries Pineapple Salmon Chia seeds Flax seeds Coconut oil Turmeric Ginger Walnuts Taking the challenge I turned the doctor's suggestions into a shopping list. About one in every eight American adults have high levels of total cholesterol. I think I may have this disease? But, Govindarajan said at the CMTA conference, the typical American diet encourages inflammation with calorically dense foods and an abundance of sugar and carbohydrates. What To Eat & Avoid When You Have Niemann Pick Disease? Explore this storyboard about Food & Dining, Pizza by Daily Meal on Flipboard. 15 Mistakes You Need To Avoid When Making Espresso At Home. In addition, most of the literature on other medications is based on patients with CMT1A (the commonest demyelinating form). The more severe the neuropathy, the more susceptible the patient to the exposure of the neurotoxin. It is characterized by inherited neuropathies without known metabolic derangements. While it is not known if that finding can be applied to CMT muscles, it is hopeful news. I have had symptoms all my life and have always told my family that my body doesnt work right. Focusing on food sources of complex carbohydrates such as beans, legumes, fibrous fruits, whole grains, starchy vegetables and dairy is a better way to get your carbohydrates without a sugar crash. 3 W Garden St WE ARE THE DRIVING FORCE BEHIND CMT RESEARCH FOR A CURE. There is not one general recommendation for everyone to help lose weight; its a matter of looking at your individual habits and making adjustments for the most success. The short answer is there is no one-size fits all. The drug, however, is associated with other direct lung (pulmonary) toxicity of differing types and is more than likely the cause of your problem. Spinach: The latest study has revealed that spinach plays a major role to increase protein synthesis and hence, it helps in faster repairing of body muscles after you complete your regular workout. :-), Sorry but a high plant diet will make your CMT symptoms worse. As far as we know, there should not be any neuropathy concerns with this medication. If they appear to worsen after starting a statin, the issue should be addressed with their physician. And I prefer vanilla coconut milk regular milk is too thick. Muscle relaxers like Soma should not affect your nerves or strength, but may cause sedation or sleepiness. But my weight is out of control. Hash Browns: 13 Facts About The Popular Breakfast Food. Pineapples are packed with bromelain and papain, two enzymes that have anti-inflammatory properties, which is great for recovering muscles. The food and drink you may need to avoid depend on the drug you are having and which CYP enzymes are involved. During this time, you and your doctor should be watching for evidence of withdrawal symptoms or a depression recurrence. HNF is a 501(c) 3 public charity enabling donors to support our mission safely. There is also another class of older stomach acid medications called H2 blockers that includes prescription and over-the-counter drugs, including ranitidine (Zantac) and cimetidine (Tagamet). Here's what to know if you're trying to adjust your diet so you can better manage diabetes. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Ever hear the term sugar crash? That term comes from the tired feeling you get after eating an excess of simple carbohydrates. There is no neurological reason for that symptom. Please advise for food, medicine, alternative treatments, stemming cell therapy etc. The drug is still frequently used to treat the symptoms of neuropathy as long as the common side effects are tolerable; there are other similar drugs available with fewer side effects. The muscle weakness that they can cause is not an issue for most of the people who take them. I was born with CMT 1a in 1966 but not officially diagnosed until 31 yrs later at Walton Neurosurgical Centre, Liverpool. Description of the most prevalent types of CMT. I am 5' 1" weighing 155 lbs. Our doctors do not encourage their use. There is some objective evidence that it reduces painful symptoms, but it is not clear if it prevents nerve damage. Most people with CMT will have no problem with anesthesia. Dietary Dos and Donts for Migraine Sufferers, Shirshasana (Headstand) Versus Inversion Therapy Using Inversion Table, Understanding Joint Pain and Tips to Get Relief Using Home Remedies, Erectile Dysfunction: Does Opioid Cause ED, Libido: Opioid Induced Female Sexual Dysfunction. Gravy and meat sauces. Make a donation to the Hereditary Neuropathy Foundation to help find treatments and cures for those living with Charcot-Marie-Tooth and Inherited Neuropathies. Ive had CMT for 45 years and Im only 48 so I have a little experience. Most CMT patients will not have a reaction other than the kind that might be expected in anyone. It is also becoming increasingly evident that the newer class of antidepressants, called selective serotonin reuptake inhibitors, or SSRIs, such as Paxil and Zoloft, also have discontinuation effects.